Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study.

Lithin, Zacharias and Thomas, Priya T and Warrier, G Manjusha and Bhaskar, Adhin and Nashi, Saraswathi and Vengalil, Seena and Polavarapu, Kiran and Kumar, Preethish and Yadav, Ravi and Alladi, Suvarna and Atchayaram, Nalini and Pal, Pramod K (2020) Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study. Annals of Indian Academy of Neurology, 23 (3). pp. 313-317. ISSN 0972-2327

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BACKGROUND AND AIMS Palliative care is an important area of intervention in neurodegenerative diseases. The aim of this study is to understand the relationship between Palliative Care Needs and Caregiver Burden among persons diagnosed with neurodegenerative diseases. METHODS A cross-sectional study design was adopted to explore the research problem. A prospective sample of 120 participants (60 Patient Caregiver dyads) of Motor Neurone Disease (MND) and Parkinson's disease (PD) were recruited for the study based on inclusion and exclusion criteria from a quaternary referral care centre for neurology in south India. Patients seeking care were recruited for the study consecutively. Palliative care outcome scale and Zarit Burden Interview scale were administered to understand the relationship. RESULTS It was found that Palliative care outcomes score was positively correlated with caregiver burden (r = 0.597), showing that there is a bi-directional relationship between palliative care needs and caregiver burden. CONCLUSION Irrespective of the differences in illness characteristics, the study found that palliative care needs are high among chronic neurological conditions which requires a noncategorical psychosocial approach in ensuring care.

Affiliation: ICMR-National Institute for Research in Tuberculosis
Item Type: Article
Uncontrolled Keywords: Caregiver burden; neurodegenerative; palliative care needs.
Subjects: Tuberculosis > Biostatistics
Divisions: Statistics
Depositing User: Dr. Rathinasabapati R
Date Deposited: 23 Nov 2022 07:09
Last Modified: 23 Nov 2022 07:09

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